William’s Thoughts on PAC

William met Dr. Ross who will do his surgery tomorrow. William said “Is this the doctor that will fix my broken heart mom?” I said “Yes.” He then said “After I’m done colouring this picture he can leave.”

We asked William what the doctor’s did today and he said “They took the blood out of my arm.” “They took a picture of my heart beep”

When we went up the elevator in the Campus Tower Inn and Suites he said “This is not a cool elevator! The hospital has cool elevators.” This made me think of when we were at hospital today. William wanted me to take the stairs and he would take the elevator with daddy and we were going to have a race. I took this picture from the bottom of stairs.

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Echo

William is getting his Echocardiogram right now and will be in this appointment for around an hour. He is doing great staying still and just fell asleep for a nap. He didn’t need to be sedated. The Ultrasound tech just said it’s nice he sedated himself. That’s William, so easygoing!

PAC Day

We arrived for pre-admission clinic at the Stollery Children’s Hospital early to ensure that we knew where to go. If you are out of province there is extra paperwork. For each test/appointment we need to present William’s health card. The Stollery Children’s hospital is inside the University of Alberta Hospital.

William will have a series of appointments and tests today to ensure the surgeon, Dr. Ross has everything he needs for tomorrow. William has had a full physical and chest X-ray. He ran after the lab tech down the hall in his fast yellow shoes. She then picked him up and ran with him into X-ray lab. He did so great, high fiving X-ray technicians. They only needed to take two X-rays because he sat so still. ❤️

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William getting his blood pressure reading. 

Afternoon Break

We went for a nice walk down by the river this afternoon after being in the hospital from 7am-1:30pm. Was so nice to get some fresh air. William loved seeing the cranes working on the buildings close by. Then he said “I’m a special boy right?” I said “Yes, you are and I’m so proud of how you did today.” He said “I think I deserve three treats then.” I couldn’t say no to him. It was so funny and cute. He chose a five cent candy, Rice Krispie square and warm almond milk. 💞

Where we are at….

Arrived safe in Edmonton…….

Carly, Mom and I drove up from Melfort. The morning was busy with cleaning and getting everything caught up but also trying to get away at a decent time. We were also filled with a bit of excitement and relief knowing that we were all healthy and the surgery will move forward.

Regan and William flew to Edmonton. The Air Canada Foundation took care of their flights through their Family Transportation program. We were contacted by Jana from the Children’s Hospital Foundation about this program. This program has taken a huge weight off our shoulders. Regan and I were concerned about the seven hour drive home after William’s surgery. William still uses a five point harness car seat and the clip will sit right where his incision is. After the surgery, Regan and William will fly to Saskatoon and he will only have the short drive back to Melfort in his car seat. We’re so grateful to this program.

Once we picked up the boys from the airport we settled into the Campus Inn Tower and Suites by the Stollery Children’s Hospital. This place is perfect for families; it’s within walking distance to the hospital and everything else we might need, like groceries. The Ronald McDonald house currently has no availability. This makes me think how blessed we are to have so much love and support but it also upsets me to think of what it is like for other families who do not have that support; on top of trying to cope with the emotional roller coaster.

In two days we will sign the surgery papers to give permission for William’s open heart surgery knowing in detail what this surgery will involve. Knowing that William will not look the same when he comes out. Knowing that he will be in pain. Knowing that he can’t play hockey in our living room, swim or even raise his arms to get dressed like he did yesterday. How do other families get through this? I know in my heart that going through this will open our eyes to how we can help other families who are going through the same thing. Before making the trip to Edmonton I struggled to get through each day. It was hectic getting everything wrapped up with work and hard to let go and pass that off to someone else. When I came home I felt exhausted but just wanted more and more time with both kids. Every bear hug William gave me I didn’t want to end. After surgery those will have to wait. It’s crazy how going through this makes you realize how important those little things are and that we all need to slow down and enjoy those moments with our children or people we love. Life is so precious and we never know what will happen. We have received so much love and support this week. I feel it’ll be easier to get through the next few days because of all the love and support we are surrounded with.

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