In A Week Today….

William’s MRI is in a week from today and I don’t really know how to prepare for it. We knew what to expect for his other appointments after his initial appointment so we could plan accordingly. Once we received the letter in the mail with his next appointment date we would just adjust our schedules to make it work.  We packed sippy cups, snacks, new books, toys, his stuffies and favorite blanket. For those follow up appointments William didn’t need to be sedated, we were able to keep him entertained so he would lay still for the 45 minutes to an hour Ultrasound and other tests.

We haven’t had to do it alone. Throughout these appointments William’s nurse, Angela has been a huge support. Angela is the nurse who does all of William’s check-up prior to Ultrasound including weight, height, blood pressure etc. She works specifically in pediatric cardiology and has been at all of William’s appointments. When the Ultrasound tech at William’s second appointment said they were going to sedate him, I was upset. It was so hard on him the first time. But Angela spoke up and said we aren’t going to do this today, William will do just fine. I remember having the same Ultrasound tech at his second appointment and her saying right away that they were going to sedate him. I felt so upset and was thinking how hard that was on him the first time. Williamhen spoke up and said no we aren’t going to need to do this today, William will do just fine. I don’t know if I would have been able to say that on that day. She sat at the end of the bed with me and sang nursery rhymes and helped me with William for the full hour. An hour is a long time to try to keep a child still and entertain him. Angela and I took turns and laughed about our bad singing, it made the time go fast. I know she has truly been a blessing in our life and journey especially on this day as Regan was not able to come. She has truly been a blessing. We had two other appointments before August 7th that went just as smoothly. The MRI will be different, she won’t be there. It will be different nurses and technicians. The MRI department has phoned to confirm his appointment and to remind us of the following; William will be put under, no eating after midnight the night prior, no clear fluids after 6am day of, be at the hospital by 7am and his appointment is at 8am. His MRI will take around an hour and 15min. We will then wait in recovery until he is awake. The new nurse suggested that we go and come back in an hour but I know I won’t be able to do that. I’ve been thinking about what’s the best way to ensure William isn’t too hungry in the morning because as soon as he wakes up he wants to eat. Do we keep him up late? Do we not put him down for a nap the day before and early to bed so he can have juice at 6am? Do we try to wake him at 11pm and then get him to eat and put him back to bed? We are leaning towards keeping him up later. I think part of me is anxious as the MRI just makes it all that much more real. I am glad we can get in next week and don’t have to wait longer because then we will be able to find out when his surgery is and can plan for that. We will have new tractors packed (thank goodness we have access to an endless supply of those), duckie, puppy, big duckie, books and tractor videos on the IPAD. Other than that we just need to do whatever we need to keep him happy without eating or drinking until they put him under. Afterwards he can pick where he wants to go to eat!

Below is a picture that the cardiologist drew for us. These are the areas they will focus on with the MRI so that the surgeons can get all the images they need.IMG_0846[2]



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